残言片语Disabled Talks

【聊了什么 The What】 5月17日全国助残日前夕，一则“百万粉丝盲人博主在盲道被电动车撞倒”的视频冲上热搜。随后，北京警方通报该事件系摆拍，涉事人员被采取刑事强制措施。舆论迅速反转。这一期，我们邀请了视障朋友孔铭，小提琴手和预备博士，一起聊聊“盲兔事件”背后的残障网红经济、公众对残障者的想象，以及互联网时代真实表达的困境。为什么公众总在怀疑盲人是不是“真盲”？当残障者成为流量商品后，真实还重要吗？而真正的问题，究竟是摆拍，还是大众从未真正理解残障者的生活？ On the eve of National Disability Day, a video exploded across Chinese social media: a blind influencer with millions of followers appeared to be knocked down by an e-scooter while walking on a tactile paving path. Soon after, Beijing police announced the incident had been staged. The people involved were criminally charged. Public opinion flipped almost overnight. In this episode, we’re joined by Kong Ming, a visually impaired violinist and soon-to-be PhD student, to unpack the deeper issues underneath the controversy: the rise of disability influencers, the public’s imagination of what disability is supposed to look like, and the impossible tension of trying to present an “authentic” disabled life online. Why are disabled people constantly asked to prove they’re “disabled enough”? When disability becomes a commodity, can authenticity still exist? And is the real issue the staged video itself, or the fact that so many people still don’t understand what it actually means to live with a disability? 【时间轴 The When】 * 00:00:00｜盲兔事件始末：从热搜到“摆拍”反转 * 00:05:27｜“一颗老鼠屎坏了一锅粥”：残障群体的愤怒与失望 * 00:10:23｜真实存在的危险：视障者在城市中的出行困境 * 00:20:43｜当平台开始怀疑残障者：限流、封杀与“真实性” * 00:29:47｜MCN、流量与残障网红工业化 * 00:34:33｜盲人并不只有一种：关于视力障碍的重要科普 * 00:44:00｜摆拍为什么会引发如此巨大的舆论反噬 * 00:53:17｜金钱、理想与“残障身份”：我们到底想成为谁？ * 00:00:00 | The controversy: From Viral Sensation to “Staged” Scandal * 00:05:27 | Anger and Disappointment Within the Disability Community * 00:10:23 | The Danger Is Real: Challenges Faced by Blind and Visually Impaired People in Cities * 00:20:43 | When Platforms Start Distrusting Disabled Creators: Shadowbanning, Deplatforming, and the Question of “Authenticity.” * 00:29:47 | MCNs, Algorithms, and the Industrialization of Disability Influencers * 00:34:33 | Blindness Is Not One Thing: Essential Context on Visual Impairment * 00:44:00 | Why the Staged Video Triggered Such an Intense Public Backlash * 00:53:17 | Money, Ideals, and Disability Identity: Who Are We Actually Trying to Become? 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. * 仁慈：假肢使用者，残障研究者，过气网红。 * 八如：INFJ听人，艺术家兼美国聋校教师。 * 孔铭：盲人，导盲犬使用者，音乐家。 * Renci: Prosthetic user, disability studies researcher, former influencer * Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality. * Kong Ming: Blind, guide dog user, musician 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 5月17日全国助残日前夕，一则“百万粉丝盲人博主在盲道被电动车撞倒”的视频冲上热搜。随后，北京警方通报该事件系摆拍，涉事人员被采取刑事强制措施。舆论迅速反转。这一期，我们邀请了视障朋友孔明，小提琴手和预备博士，一起聊聊“盲兔事件”背后的残障网红经济、公众对残障者的想象，以及互联网时代真实表达的困境。为什么公众总在怀疑盲人是不是“真盲”？当残障者成为流量商品后，真实还重要吗？而真正的问题，究竟是摆拍，还是大众从未真正理解残障者的生活？ On the eve of National Disability Day, a video exploded across Chinese social media: a blind influencer with millions of followers appeared to be knocked down by an e-scooter while walking on a tactile paving path. Soon after, Beijing police announced the incident had been staged. The people involved were criminally charged. Public opinion flipped almost overnight. In this episode, we’re joined by Kong Ming, a visually impaired violinist and soon-to-be PhD student, to unpack the deeper issues underneath the controversy: the rise of disability influencers, the public’s imagination of what disability is supposed to look like, and the impossible tension of trying to present an “authentic” disabled life online. Why are disabled people constantly asked to prove they’re “disabled enough”? When disability becomes a commodity, can authenticity still exist? And is the real issue the staged video itself, or the fact that so many people still don’t understand what it actually means to live with a disability? 【时间轴 The When】 * 00:02:00｜残障是如何流动到每个人身边的？ * 00:05:00｜“如果我变成了残障者，我就不想活了” * 00:09:55｜对残障者的打量为什么会不礼貌？ * 00:13:15｜为什么有人残障这个状态会恐惧？ * 00:19:00｜拒绝残障的身体是在拒绝存在的不确定性 * 00:21:00｜对医学与康复的迷信让我们难以与残障的身体共存 * 00:23:00｜对残障者的怜悯/可怜是一件好事吗？ * 00:28:50｜可怜与恐惧都反映了我们的价值观 * 00:32:18｜与残障者共情才能真正尊重残障者的存在？ * 00:36:36｜跨越种族、性别、身体状态的共情是否可能？ * 00:41:07｜基于刻板印象的贴标签符合生物本能，但那是正确的吗？ * 00:43:11｜如果残障状态无法避免，我们想生活在什么样的社会？ * 00:48:44｜残障在社会中的可见度决定了对残障的情感 * 00:02:00 | How disability flows into everyone’s life * 00:05:00 | "If I became disabled, I wouldn't want to live anymore" * 00:09:55 | Why is staring at people with disabilities considered impolite? * 00:13:15 | Why are some people afraid of the state of being disabled? * 00:19:00 | Rejecting a disabled body is a rejection of the uncertainty of existence * 00:21:00 | How a fixation on medicine and "recovery" makes it hard to coexist with disabled bodies * 00:23:00 | Is pitying or feeling sorry for people with disabilities a good thing? * 00:28:50 | Both pity and fear reflect our core values * 00:32:18 | Can we only truly respect the existence of disabled people through empathy? * 00:36:36 | Is empathy that transcends race, gender, and physical ability even possible? * 00:41:07 | Labeling based on stereotypes aligns with biological instinct—but is it right? * 00:43:11 | If disability is inevitable, what kind of society do we want to live in? * 00:48:44 | The visibility of disability in society determines our emotional response toward it 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. * 仁慈：假肢使用者，残障研究者，过气网红。 * 孔铭：盲人，导盲犬使用者，音乐家。 * 彦林，杜克大学哲学博士生，在慢性病中做田野的哲学家 * Renci: Prosthetic user, disability studies researcher, former influencer * Kong Ming: Blind, guide dog user, musician * Yan Lin: Duke University philosophy PhD student, philosopher doing fieldwork through chronic illness 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 四月是孤独症接纳月，从提升意识到真正接纳，我们还要走多少弯路？本期节目，主播八如邀请到Jayne与5岁半神经多样性男孩"小熊"的妈妈Anqi，围绕孤独症谱系展开了一场真实而温柔的对话。当我们说一个孩子"有问题"时，我们到底是在描述他，还是在描述我们无法理解他的方式？重复动作、情绪崩溃、社交困难、对环境过度敏感……它们不一定是"问题行为"，而可能是孩子在用自己的方式调节世界、表达压力，甚至求救。对神经多样性保持包容，不只是为了这些孩子，更是在帮我们每一个人，与那个从未被好好对待过的内心小孩重新和解。孤独症谱系广阔而多元，本期嘉宾们的经历与视角只是其中一隅，无法代表所有人的生命体验，但在残言片语，每一个故事，都值得被认真倾听。 April is National Autism Acceptance Month. From raising awareness to genuine acceptance, how many detours still lie ahead? In this episode, host Baru sits down with Jayne and Anqi—mother of Xiǎo Xióng, a 5-and-a-half-year-old neurodivergent boy—for a candid, tender conversation about the autism spectrum. When we say a child "has a problem," are we really describing them, or are we describing our own inability to understand them? Repetitive movements, emotional meltdowns, social difficulties, sensory overwhelm—these aren't necessarily "problem behaviors." They may be a child's own way of regulating their world, expressing stress, or even reaching out for help.Holding space for neurodiversity isn't just for these children. It helps each of us make peace with the inner child who was never quite met with the care they needed. The autism spectrum is vast and varied. The experiences and perspectives our guests share are only one small corner of it, and can't speak for every life lived on the spectrum. But in these fragments of conversation, every story deserves to be heard with care. 【时间轴 The When】 * 00:00:00 开场介绍 * 00:01:23 什么是孤独症谱系？ * 00:01:57 安琪的"发现时刻"①：睡眠挑战 * 00:06:41 安琪的"发现时刻"②：旅行中的感官世界 * 00:10:27 作为成年ASD女性的成长经历 * 00:17:16 为什么选择不给小熊确诊？ * 00:25:28 社交与语言：来有往的对话很难 * 00:42:24 大众刻板印象 vs. 真实谱系 * 00:49:36 作为家长，我希望获得什么支持？ * 01:05:12 对非神经多样性人士说的话 * 00:00:00 Intro & Guest Introductions * 00:01:23 What Is Autism Spectrum Disorder * 00:01:57 Moment of Recognition ①: Sleep Struggles * 00:06:41 Moment of Recognition ②: Sensory Sensitivities While Traveling * 00:10:27 Growing Up Undiagnosed as an Autistic Woman * 00:17:16 Why No Formal Diagnosis for Xiǎo Xióng? * 00:25:28 Social & Language Challenges: The Art of Back-and-Forth * 00:42:24 Stereotypes vs. the Real Spectrum * 00:49:36 What Support Do Neurodivergent Families Need? * 01:05:12 A Message to Neurotypical People 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. * 八如：INFJ听人，艺术家兼美国聋校教师。 * Jayne：与前庭型偏头痛和单侧听损生活共存二十年，工程师/life coach/女性主义社群主理人。 * Anqi: 五岁神经多元男孩的妈妈。 * Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality. * Jayne: Co-existing vestibular migraine and unilateral hearing loss for twenty years; engineer, life coach, and founder of a feminist community. * Anqi: Mother of a five year old neuron divergent child. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 这一期播客，主播仁慈与嘉宾 Jayne 一起聊了聊 ADHD（注意缺陷多动障碍）是如何逐渐被一些人视为一种社交“时髦病”甚至“聪明病”的。她们从小红书上流行的 ADHD 自测表是否科学谈起，讨论了 ADHD 究竟是不是一种疾病，以及确诊 ADHD 背后可能存在的性别视角。Jayne 随后分享了成年人确诊 ADHD 的困难与挑战，并介绍了常见的 ADHD 治疗药物。仁慈也聊到，有 ADHD 的人可能更适合哪些类型的工作，以及当越来越多人把 ADHD 写进个人简介时，它是否正在变成一种“时尚标签”。最后，两人讨论了作为朋友、伴侣和家人，我们可以如何更好地支持身边有 ADHD 的人，同时也谈到为什么 ADHD 不应该成为不负责任的借口。这一期播客，希望能带你更立体地了解 ADHD。 In this episode, host Mercy and guest Jayne talk about how ADHD (Attention Deficit Hyperactivity Disorder) has increasingly been portrayed as a social “fancy illness” or even a “smart person’s condition.” Starting with the popular ADHD self-tests circulating on Xiaohongshu (Rednote), they discuss whether these tests are scientifically reliable and ask a deeper question: is ADHD truly a disorder? They also explore the gender dynamics behind ADHD diagnoses. Jayne then shares how difficult it can be for adults to receive an ADHD diagnosis and explains common medications used in ADHD treatment. Renci follows by discussing what types of work environments may better suit people with ADHD, and whether putting “ADHD” in one’s bio has become a kind of social badge or identity marker. Finally, they talk about how friends, partners, and family members can better support people with ADHD—and why ADHD should not be used as an excuse for irresponsibility. This episode offers a thoughtful and accessible conversation to help you better understand ADHD. 【时间轴 The When】 * 00:01:20 网络上流行的 ADHD 自测表真的可靠吗？ * 00:11:53 ADHD 真的是一种“病”吗，还是别的什么？ * 00:17:30 为什么女孩在童年更少被诊断出 ADHD？ * 00:28:28 成年后才去确诊 ADHD，到底有多难？ * 00:37:51 ADHD 的治疗药物有哪些？真的有效吗？ * 00:44:00 哪些名人被诊断为 ADHD？（有些可能会让你很意外！） * 00:45:45 有 ADHD 的人更适合什么样的职业？ * 00:46:35 为什么很多人在网上自测觉得自己有 ADHD，却反而更痛苦？ * 00:53:38 总是无法集中注意力？也许这真的不是你的错 * 00:59:40 把 ADHD 写进社交媒体个人简介：是自我认同还是一种潮流？ * 01:06:00 如何成为更支持 ADHD 人群的朋友、伴侣或家人？ * 01:14:19 ADHD 不是不负责任的借口 * 01:20:10 ADHD 可以被“治愈”吗？ * 00:01:20 Are viral ADHD self-tests online actually reliable? * 00:11:53 Is ADHD really a disorder—or something else? * 00:17:30 Why are girls less likely to be diagnosed with ADHD in childhood? * 00:28:28 Getting diagnosed as an adult: why is it so hard? * 00:37:51 ADHD medications: what are they and do they really work? * 00:44:00 Famous people with ADHD (some will surprise you!) * 00:45:45 What kinds of careers might suit people with ADHD better? * 00:46:35 Why self-diagnosing ADHD online can sometimes make people feel worse * 00:53:38 Can’t focus? It may not actually be your fault * 00:59:40 Putting “ADHD” in your social media bio: empowerment or trend? * 01:06:00 How to better support friends, partners, and family members with ADHD * 01:14:19 ADHD is not an excuse for irresponsibility * 01:20:10 Can ADHD ever be “cured”? 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. * 仁慈：残障者，残障研究者，残障法博士。《残言片语》播客主播。 * Jayne：与前庭型偏头痛和单侧听损生活共存二十年，工程师/life coach/女性主义社群主理人。 * Mercy: A person with disabilities, disability studies researcher, PhD in disability law. Host of Disabled Voices. * Jayne: Co-existing vestibular migraine and unilateral hearing loss for twenty years; engineer, life coach, and founder of a feminist community. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]