残言片语Disabled Talks

【聊了什么 The What】 这一期播客，主播仁慈与嘉宾 Jayne 一起聊了聊 ADHD（注意缺陷多动障碍）是如何逐渐被一些人视为一种社交“时髦病”甚至“聪明病”的。她们从小红书上流行的 ADHD 自测表是否科学谈起，讨论了 ADHD 究竟是不是一种疾病，以及确诊 ADHD 背后可能存在的性别视角。Jayne 随后分享了成年人确诊 ADHD 的困难与挑战，并介绍了常见的 ADHD 治疗药物。仁慈也聊到，有 ADHD 的人可能更适合哪些类型的工作，以及当越来越多人把 ADHD 写进个人简介时，它是否正在变成一种“时尚标签”。最后，两人讨论了作为朋友、伴侣和家人，我们可以如何更好地支持身边有 ADHD 的人，同时也谈到为什么 ADHD 不应该成为不负责任的借口。这一期播客，希望能带你更立体地了解 ADHD。 In this episode, host Mercy and guest Jayne talk about how ADHD (Attention Deficit Hyperactivity Disorder) has increasingly been portrayed as a social “fancy illness” or even a “smart person’s condition.” Starting with the popular ADHD self-tests circulating on Xiaohongshu (Rednote), they discuss whether these tests are scientifically reliable and ask a deeper question: is ADHD truly a disorder? They also explore the gender dynamics behind ADHD diagnoses. Jayne then shares how difficult it can be for adults to receive an ADHD diagnosis and explains common medications used in ADHD treatment. Renci follows by discussing what types of work environments may better suit people with ADHD, and whether putting “ADHD” in one’s bio has become a kind of social badge or identity marker. Finally, they talk about how friends, partners, and family members can better support people with ADHD—and why ADHD should not be used as an excuse for irresponsibility. This episode offers a thoughtful and accessible conversation to help you better understand ADHD. 【时间轴 The When】 * 00:01:20 网络上流行的 ADHD 自测表真的可靠吗？ * 00:11:53 ADHD 真的是一种“病”吗，还是别的什么？ * 00:17:30 为什么女孩在童年更少被诊断出 ADHD？ * 00:28:28 成年后才去确诊 ADHD，到底有多难？ * 00:37:51 ADHD 的治疗药物有哪些？真的有效吗？ * 00:44:00 哪些名人被诊断为 ADHD？（有些可能会让你很意外！） * 00:45:45 有 ADHD 的人更适合什么样的职业？ * 00:46:35 为什么很多人在网上自测觉得自己有 ADHD，却反而更痛苦？ * 00:53:38 总是无法集中注意力？也许这真的不是你的错 * 00:59:40 把 ADHD 写进社交媒体个人简介：是自我认同还是一种潮流？ * 01:06:00 如何成为更支持 ADHD 人群的朋友、伴侣或家人？ * 01:14:19 ADHD 不是不负责任的借口 * 01:20:10 ADHD 可以被“治愈”吗？ * 00:01:20 Are viral ADHD self-tests online actually reliable? * 00:11:53 Is ADHD really a disorder—or something else? * 00:17:30 Why are girls less likely to be diagnosed with ADHD in childhood? * 00:28:28 Getting diagnosed as an adult: why is it so hard? * 00:37:51 ADHD medications: what are they and do they really work? * 00:44:00 Famous people with ADHD (some will surprise you!) * 00:45:45 What kinds of careers might suit people with ADHD better? * 00:46:35 Why self-diagnosing ADHD online can sometimes make people feel worse * 00:53:38 Can’t focus? It may not actually be your fault * 00:59:40 Putting “ADHD” in your social media bio: empowerment or trend? * 01:06:00 How to better support friends, partners, and family members with ADHD * 01:14:19 ADHD is not an excuse for irresponsibility * 01:20:10 Can ADHD ever be “cured”? 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. * 仁慈：残障者，残障研究者，残障法博士。《残言片语》播客主播。 * Jayne：与前庭型偏头痛和单侧听损生活共存二十年，工程师/life coach/女性主义社群主理人。 * Mercy: A person with disabilities, disability studies researcher, PhD in disability law. Host of Disabled Voices. * Jayne: Co-existing vestibular migraine and unilateral hearing loss for twenty years; engineer, life coach, and founder of a feminist community. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 这一期节目，八如和疲惫娇娃CyberPink的主播小蓝和小杨一起聊了两部关于残障与照护的电影：刘玉玲主演的《罗丝密》(Rosemead) 与圣丹斯今年新出的口碑佳作《带我回家》(Take Me Home)。 讲述残障者的故事，很难绕过照护者的故事，也很容易陷入苦大仇深的叙事漩涡；毕竟社会给残障者的资源那么少，而在资源的匮乏中能讲出的故事常常是《罗丝密》中描绘出的毁灭性的绝路。而《带我回家》则通过一种模糊虚构与真实的即兴手段，让残障演员在故事中展现全新的创作方式。或许这种匮乏并不是必须的，或许优绩主义的亚裔家庭不一定要把残障视为绝路，或许电影人能给出的激进的想象能够推动我们重塑现实，毕竟生而为人我们终将是脆弱的。 In this episode we are joined our friends at 疲惫娇娃CyberPink to discuss two films about disability and caregiving: Rosemead, starring Lucy Liu, and Take Me Home, a critically acclaimed new Sundance film. When telling stories about disabled people, it is hard to avoid telling the stories of caregivers as well. It is also easy to fall into a heavy, tragic narrative spiral. After all, society offers so few resources to disabled people, and from within that scarcity, the kinds of stories that emerge often look like the devastating dead end portrayed in Rosemead. Take Me Home, by contrast, uses an improvisational approach that blurs fiction and reality, allowing disabled actors to reveal a wholly different creative mode within the film itself. Perhaps this scarcity is not inevitable. Perhaps, in high-achieving Asian families, disability does not have to be treated as a dead end. Perhaps the radical imagination offered by filmmakers can help us reshape reality—because as human beings, we are all ultimately fragile. 【时间轴 The When】 * 00:00 - 两部电影的初观感 * 08:11 - 《柔似蜜》：真实的悲剧还是缺乏想象力的“绝路” * 19:01 - 《待我回家》中的姐姐角色：拒绝牺牲自我，寻找更长久的方案 * 31:01 - 《待我回家》的激进结局 * 36:39 - 导演 Liz Sargent 谈“激进的想象力”(Radical Imagination) * 45:53 - 电影工业能够多大程度上支持残障演员 * 55:31 - 心理健康与精神健康在政策支持上的滞后性 * 59:11 - 亚裔社区的“家丑”观与优绩主义 * 71:14 - 人类本来就是脆弱的 * 00:00 – First impressions of the two films * 08:11 – Rosemead: a true tragedy, or a “dead end” shaped by a failure of imagination * 19:01 – The sister character in Take Me Home: refusing self-sacrifice and searching for a more sustainable path * 31:01 – The radical ending of Take Me Home * 36:39 – Director Liz Sargent on “radical imagination” * 45:53 – To what extent the film industry can support disabled actors * 55:31 – The lag in policy support for mental and psychological health * 59:11 – The Asian community’s view of “family shame” and meritocracy * 71:14 – Human beings are fragile to begin with 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 这一期《残言片语》，我们从Alex Honnold徒手攀登台北101大楼谈起。八如采访仁慈分享了作为假肢使用者的攀岩历程——从室内岩馆到Joshua Tree国家公园首次挑战30米户外岩壁的经历。我们探讨了岩馆中的无障碍挑战、残障者攀岩的分级制度，以及攀岩如何成为一项相对包容但仍有改进空间的运动。在攀岩中,每个人都能在风险与专注之间找到属于自己的自由与平静，而这正是运动本身所带来的纯粹幸福。 In this episode of "Fragments of Words," we begin with Alex Honnold's free solo climb of Taipei 101. Baru interviews Renci, who shares their climbing journey as a prosthetic user—from indoor gyms to their first outdoor climb on a 30-meter rock wall at Joshua Tree National Park. We discuss accessibility challenges at climbing gyms, the classification system for adaptive climbing, and how climbing has become a relatively inclusive sport that still has room for improvement. In climbing, everyone can find their own freedom and peace between risk and focus—this is the pure joy that sports themselves bring. 【时间轴 The When】 * 00:00 - 开场与新年问候 * 00:42 - 感谢听众与2025播客大赏 * 02:06 - Alex Honnold攀登台北101的启发 * 04:32 - 仁慈的攀岩初体验：从清华到Joshua Tree * 08:03 - 第一次户外攀岩：30米大岩石的挑战 * 13:09 - 攀岩作为「生与死的运动」 * 17:46 - 攀岩中的包容性与个人化体验 * 25:36 - 美国残障者攀岩比赛经验分享 * 29:01 - 使用假肢攀岩的挑战与适应 * 47:28 - 给攀岩新手的建议：第一次就是要爬上去 * 00:00 - Opening and New Year Greetings * 00:42 - Gratitude to Listeners & 2025 Podcast Awards * 02:06 - Inspiration from Alex Honnold's Taipei 101 Climb * 04:32 - Renci's First Climbing Experience: From Tsinghua to Joshua Tree * 08:03 - First Outdoor Climb: The 30-Meter Rock Challenge * 13:09 - Climbing as a "Sport of Life and Death" * 17:46 - Inclusivity and Personalization in Climbing * 25:36 - Sharing Experience from U.S. Adaptive Climbing Competition * 29:01 - Challenges and Adaptations of Climbing with a Prosthetic * 47:28 - Advice for New Climbers: Just Get to the Top on Your First Try 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 本期《残言片语》，主播仁慈和八如邀请的嘉宾，从听众席走到了麦克风前。Jayne目前在加州工作，同时还是一名长期与前庭性偏头痛共处的人。她没有典型的剧烈头痛，却会在某些时刻突然眩晕、脑雾、失去行动与工作的能力。从11岁被反复误诊，到成年后在学校、职场和美国医疗体系里不断自证，本期节目顺着她的故事，聊到了女性的痛为什么总是不被相信，慢性病如何悄悄改变人生选择，以及当制度跟不上身体时，人类只能如何硬撑。也希望听众可以与我们一起思考，当痛苦隐形的时候，我们还能不能够，又该如何继续彼此相信，彼此支持? In this episode of Disabled Talks, Hosts Merci and Baru invite a guest who steps out of the audience and up to the microphone. Jayne, who currently works in California, is also someone who has been living with vestibular migraine. She doesn’t experience the stereotypical intense head pain, but instead faces sudden vertigo, brain fog, and moments of losing the ability to move or work. From repeated misdiagnoses at age eleven to constantly having to prove herself in school, the workplace, and the U.S. healthcare system as an adult, her story opens up a larger conversation about why women’s pain is so often doubted, how chronic illness quietly reshapes life choices, and what it means to keep pushing forward when systems fail to meet our bodies. We also invite listeners to think with us: when suffering is invisible, can we still learn how to believe in one another and support each other? 【时间轴 The When】 * 00:00:00｜偏头痛，不只是“头痛那么简单” * 00:01:55｜没有头痛，却彻底失能：前庭性偏头痛是什么？ * 00:03:12｜被误解的偏头痛症状全谱：脑雾、视觉雪花、失语 * 00:05:37｜吃了药也不一定好：偏头痛的真实用药困境 * 00:09:29｜误诊、耳聋与被当作“励志榜样” * 00:14:17｜留学与职场：慢性病如何悄悄重塑你的一生选择 * 00:19:39｜开车时突然“雪花屏”：隐形残障的危险瞬间 * 00:21:54｜为什么确诊这么难？美国医疗系统的推皮球 * 00:32:18｜为什么女性的痛总是不被相信？ * 00:47:51｜如果学校和职场真的理解慢性病，会长什么样？ * 01:00:59｜互助、命名与不孤独：我们为什么要关注隐形残障 * 00:00:00｜Migraine Is More Than “Just a Headache” * 00:01:55｜No Headache, Yet Completely Disabled: What Is Vestibular Migraine? * 00:03:12｜The Full, Misunderstood Spectrum of Migraine Symptoms: Brain Fog, Visual Snow, Aphasia * 00:05:37｜Medication Doesn’t Always Work: The Real Treatment Dilemma of Migraine * 00:09:29｜Misdiagnosis, Hearing Loss, and Being Turned into an “Inspirational Example” * 00:14:17｜Study Abroad and the Workplace: How Chronic Illness Quietly Reshapes Life Choices * 00:19:39｜“Visual Snow” While Driving: A Dangerous Moment of Invisible Disability * 00:21:54｜Why Is Diagnosis So Hard? Being Passed Around in the U.S. Healthcare System * 00:32:18｜Why Is Women’s Pain So Often Disbelieved? * 00:47:51｜What Would Schools and Workplaces Look Like If They Truly Understood Chronic Illness? * 01:00:59｜Mutual Aid, Naming, and Not Being Alone: Why Invisible Disability Matters 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. * 仁慈：假肢使用者，残障研究者，过气网红。 * 八如：INFJ听人，艺术家兼美国聋校教师。 * Jayne：与前庭偏头痛和单侧听损共存二十年，工程师/Life Coach/女性主义社群主理人。 * Renci: Prosthetic user, disability studies researcher, former influencer * Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality. * Jayne：20 years of co-existing with vestibular migraine and unilateral hearing loss; engineer, life coach, and feminist community organizer. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]