残言片语Disabled Talks - 节目列表

【聊了什么 The What】 当我们热烈讨论"有尊严地死去"的权利时，是否曾停下来思考，有多少人尚未获得"有尊严地活着"的条件？在当代政治与伦理的激辩场上，安乐死权利被包装为自由与选择的象征，但在一个对残障理解不足的社会里，这种自由选择是否真的如表面般简单？ 仁慈与林三土展开了一场关于安乐死的深度对话，试图穿透这个议题表面的浪漫色彩，直面其背后的复杂张力。从纳粹德国的T4计划到现代医疗系统的结构性缺陷，从残障者的日常挣扎到生命尊严的多元解读，这场对话展现了安乐死辩论中常被忽视的残障视角。 When we passionately debate the right to “die with dignity,” have we ever paused to ask how many people still lack the conditions to “live with dignity”? In the contemporary arena of political and ethical debates, the right to euthanasia is often presented as a symbol of freedom and personal choice. But in a society that lacks a thorough understanding of disability, is that freedom and choice really as straightforward as it seems? In this in-depth conversation, Mercy and Lin Santu discuss euthanasia and attempt to cut through its romanticized veneer, confronting the complex tensions beneath the surface. From Nazi Germany’s T4 program to the structural shortcomings of modern healthcare systems, from the daily struggles of people with disabilities to the multifaceted interpretations of dignity in life, their dialogue highlights the perspectives on euthanasia that are often overlooked by mainstream debates. 【时间轴 The When】 * 00:00:00 什么是高质量的生活?从残障视角重新思考生命的价值 * 00:05:38 安乐死的不同形式:主动与被动安乐死的区分 * 00:06:58 痛苦与自主选择:安乐死权益的基本诉求 * 00:25:31 早期安乐死运动中的偏见:对残障生活的误解 * 00:32:02 医患关系中的信息不对等:如何做出真正知情的选择? * 00:37:48 现有安乐死法案中缺失的残障视角 * 00:47:53 家庭压力下的"自主"选择 * 00:52:22 照护责任应由社会承担而非个人 * 01:18:24 在追求"尊严死"之前,应先确保"尊严活" * 00:00:00 So-called “life quality”: Rethinking the value of life from a disability perspective * 00:05:38 Different forms of euthanasia: Distinguishing between active and passive euthanasia * 00:06:58 Pain and autonomy: The fundamental demands of the right to euthanasia * 00:25:31 Early euthanasia movements: Misunderstandings surrounding the lives of disabled people * 00:32:02 Information asymmetry in doctor-patient relationships: How can we make truly informed choices? * 00:37:48 The missing disability perspective in current euthanasia laws * 00:47:53 “Autonomous” decisions under family pressure * 00:52:22 Care responsibilities should be borne by society, not individuals * 01:18:24 Before striving for a “dignified death,” we must first ensure a “dignified life” 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 本期节目是与播客《城市罐头》的串台合作，同时也是其“无障碍系列”的第二期。本期聚焦听障社群，由主播八如与在上海出生，目前在美国从事建筑设计的聋人朋友 Tarry、建筑师 Yao 以及城市设计师小王，共同探讨听障空间的生活，语言，和社区体验。 点击这里查看本期节目的文字稿 This episode is a collaboration with the podcast “城市罐头”. Focusing on the Deaf and hard-of-hearing community, our host Baru is joined by Tarry—a deaf friend born in Shanghai who now works in architectural design in the U.S.—along with architect Yao and urban designer Xiao Wang. Together, they explore how people with hearing impairments experience space, language, and community. Click here for this episode’s transcript 【时间轴 The When】 * 00:03:16 "聋人文化"解析：听障群体称谓的演变 * 00:07:11 空间与手语的关系:建筑设计师眼中的听障空间想象 * 00:13:18 特殊教育现状:口语教育vs手语教育的争议 * 00:23:32 城市信息获取:听障人士如何应对城市中的声音信息 * 00:40:22 公共空间设计:电影院等场所的无障碍设施现状 * 00:45:09 开放空间优势:双层中庭对听障人士社交的独特价值 * 00:51:02 文化空间改造:如何让艺术场所更包容听障群体 * 00:03:16 Explaining “Deaf culture”: How terminology for the hearing-impaired community has evolved * 00:07:11 The relationship between space and sign language: Perspectives from an architectural designer on spaces for the hearing-impaired * 00:13:18 The current state of special education: The debate between oral education vs. sign language education * 00:23:32 Accessing city information: How hearing-impaired individuals navigate sound-based information in urban environments * 00:40:22 Public space design: The current status of accessibility facilities in places like movie theaters * 00:45:09 The benefits of open spaces: How a double-level atrium uniquely supports social interaction for the hearing-impaired * 00:51:02 Transforming cultural venues: How to make art spaces more inclusive for the Deaf and hard-of-hearing community 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 嘉宾 * 伊如 纽约聋校老师兼瓶颈期艺术家 * Tarry 建筑打工仔 * Yao 建筑师 * 小王 城市设计师 BGM * September by Earth, Wind & Fire 【拓展链接 The Links】 https://experiments.withgoogle.com/seeing-music 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 本集播客录制于美国大选结果出来之前。 主播仁慈受邀参加“美轮美换”播客，与Lokin一起讨论美国政治中的残障问题。仁慈和Lokin讨论了为什么特朗普关于残障的种种言论都映射白人至上主义而让人感到不适，也聊到了美国著名的残障政治家有哪些。仁慈从残障视角讨论了及拜登退选风波中关于年龄和能力的争议。最后，仁慈和Lokin讨论了残障者在美国总统选举中的角色以及她们投票时遇到的挑战。 Mercy, the host, was invited to join the The American Roulette podcast to discuss disability issues in American politics with Lokin. Mercy and Lokin explored why Trump’s various comments on disability reflect white supremacy and make people uncomfortable, and they also discussed notable disability advocates in U.S. politics. Mercy shared her perspective on the controversies surrounding age and capability in the context of Biden’s decision not to run. Finally, Mercy and Lokin talked about the role of disabled individuals in U.S. presidential elections and the challenges they face when voting. This episode was recorded before the results of the U.S. election were announced. 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【主播介绍 Hosts】 * 仁慈：残障者，残障研究者，过气网红。 * Lokin：美国法学院学生，即将成为一名纽约诉讼律师。 * Mercy: Person with disability, disability studies researcher, ex-influencer. * Lokin:A law student in the United States, soon to become a litigation attorney in New York. 【时间轴 The When】 * 00:04:14 什么是能力健全中心主义(ableism)？ * 00:07:24 罗斯福时代的残障隐藏 * 00:25:45 残障身份的自我认同与社会认同 * 00:37:21 John Fetterman与心理健康议题 * 00:42:38 人类脆弱性的政治意义 * 00:56:29 能力与职位匹配的讨论 * 01:11:43 残障选民面临的投票障碍 00:04:14 - Understanding ableism: What is it? 00:07:24 - FDR era: Hiding disability in politics 00:25:45 - Disability identity: Personal vs. social recognition 00:37:21 - John Fetterman and mental health in politics 00:42:38 - The political significance of human vulnerability 00:56:29 - Debating ability-role fit in leadership 01:11:43 - Voting barriers for disabled citizens 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 主播仁慈和八如邀请到了积极服务残障社群的热心同志，大饺子和小汤圆，来一起探讨如何成为残障社群的好盟友。嘉宾们分享了和残障社群共处的点滴，并在其中觉察自身的交叉性，勉励各自在成为盟友的旅途中坚持学习和反思，包括知道何时"传递麦克风"给更受影响的社群。欢迎来观察我们的真心话和大冒险，一起来更好的支持彼此和残障社群。 Hosts Renci and Baru invite active community members Da Jiao Zi and Xiao Tang Yuan to discuss how to be good allies to people with disabilities. The guests share their experiences of interacting with the disability community, reflecting on their own intersectionality, and encouraging each other to continue learning and reflecting on their journey to becoming allies, including knowing when to "pass the microphone" to more affected communities. Join us for our truth-or-dare session as we explore ways to support each other as well as the disability community. 【嘉宾介绍 Guests】 * 大饺子：听人，名义上在做城市无障碍研究，实际上放弃梦想变成了大饺子 * 小汤圆：同行者，残健融合的培训专家，什么都在做的斜杠青年 * Da Jiaozi: Claims to study urban accessibility, but gave up dreams and turned into a dumpling * Xiao Tangyuan: Disability inclusion trainer by day, career juggler by night 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【主播介绍 Hosts】 仁慈：残障者，残障研究者，过气网红。 八如：INFJ听人，艺术家兼美国聋校教师。 Mercy: Person with disability, disability studies researcher, ex-influencer. Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality. 【时间轴 The When】 * 00:00:00 残障盟友的多元身份:从非残障者到深度连接者的转变 * 00:13:20 盟友历程中的救世主情结:从施舍到平等对话的蜕变 * 00:22:49 从志愿者到深度参与者的转变 * 00:35:35 残障者的不配得感:社会建构的结果 * 00:41:09 何为真正的盟友:超越标签与身份的思考 * 00:48:58 无障碍概念的复杂性与模糊性 * 00:52:24 空降者与真诚盟友的区别:从消费到共情的转变 * 01:10:36 残障身份的流动性与普遍性思考 * 0:00 - Beyond allyship: From outsider to deep connector * 13:20 - Overcoming the savior complex: Finding equal dialogue * 22:49 - Evolution: From volunteer to active participant * 35:35 - Imposter syndrome in disability: A social construct * 41:09 - True allyship: Looking past labels * 48:58 - Accessibility: It's complicated * 52:24 - Drive-by allies vs. genuine supporters: From consumption to empathy * 1:10:36 - Disability identity: Fluid and universal 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么 The What】 人工智能正以惊人的速度发展，并被视为塑造未来的关键力量。但这期播客的两位嘉宾从残障群体的视角出发，对AI技术提出了尖锐的质疑：技术进步真的能让所有人受益吗？当前的AI系统是在放大人类的偏见，还是在创造一个更加平等的世界？ 从招聘算法对女性的歧视，到自动驾驶系统无法识别轮椅使用者，再到面向残障人士的"高科技"辅具背后的救世主心态……在技术浪潮席卷而来之际，我们如何确保每一个人的声音都能被倾听？ Artificial Intelligence is advancing at a remarkable pace and is widely seen as a transformative force shaping our future. However, in this podcast, two guests examine AI technology through the lens of disability rights, raising critical questions: Will technological progress truly benefit everyone? Are current AI systems amplifying human biases, or are they creating a more equitable world? From recruitment algorithms that discriminate against women to self-driving systems that fail to recognize wheelchair users, to the savior complex behind "high-tech" assistive devices for people with disabilities - as the wave of technology sweeps forward, how do we ensure that every voice is heard and considered? 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【主播介绍 Hosts】 仁慈：残障者，残障研究者，过气网红。 吴迪：MIT博士，研究兴趣医疗、科技、和残障。 Mercy: Person with disability, disability studies researcher, ex-influencer. Di Wu: MIT Phd, research focus on healthcare, tech, and disability. 【时间轴 The When】 * 00:03:14 日常生活中无处不在的AI算法，以YouTube推荐为例 * 00:19:39 招聘算法因样本有偏差而歧视女性 * 00:26:04 AI在识别残障者方面存在问题，以自动驾驶识别轮椅为例 * 00:38:44 AI监测学生上课情况，可能会对残障学生不利 * 00:42:43 一些辅助技术是为了让残障者"变正常"，而非帮助他们更好地参与社会 * 00:54:53 好的辅助技术需要将残障者视为专家，而非仅仅是用户 * 3:14 - AI is everywhere * 19:39 - Recruitment AI bias against women * 26:04 - Self-driving cars failing to detect wheelchairs * 38:44 - AI classroom monitoring impacts on disabled students * 42:43 - Assistive tech: normalizing vs. enabling participation * 54:53 - Disabled people as experts, not just users 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]

【聊了什么The What】 主播仁慈分享了她作为残障者的个人经历，以及在成长过程中面临的各种挑战和歧视。她讲述了如何拥抱愤怒来成为残障权利倡导者和学者。八如作为非残障者分享了她与残障社群产生联结的缘起，以及在电影和聋重人教育领域的工作经验。 这一期节目探讨了残障不仅仅是固定身份，也是每个人可能经历的流动瞬间。希望残言片语可以让更多人关注到残障议题，切换残障视角看世界，发现这个世界并非我们想象中那样理所当然，才能更好的身处社会，彼此关怀。 Host Mercy generously shared her personal experience as a person with a disability, recounting the various challenges and discrimination she faced growing up. She spoke about how she embraced her anger to become a disability rights advocate and scholar. As a non-disabled person, Baru shared how she first connected with the disability community, along with her experiences working in film and education for the deaf and hard of hearing. This episode explored the idea that disability is not just a fixed identity but something anyone might experience at different moments in life. The hope is that these words can inspire more people to pay attention to disability issues, shift their perspectives, and see the world differently. Only by understanding that the world is not as straightforward as we often assume can we foster a more caring and inclusive society. 【我们是谁 Who We Are】 残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题，我们致力于在日常生活和社会热点中搜寻被忽视的残障视角，期待和观众一起挑战刻板印象，打击健全中心主义（Ableism），从而真诚地感知、理解、创造自己与世界。 “Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience. 【主播介绍 Hosts】 仁慈：残障者，残障研究者，过气网红。 八如：INFJ听人，艺术家兼美国聋校教师。 Mercy: Person with disability, disability studies researcher, ex-influencer. Baru: Hearing artist, Teacher of the Deaf and Hard of Hearing, INFJ personality. 【时间轴 The When】 * 00:05:10 愤怒是创作的源泉 * 00:11:01 仁慈成为仁慈的故事：选择相信一种叙事 * 00:26:42 八如成为八如的故事：学习手语，与聋人社群的联结 * 00:45:36 人的脆弱性，身体记忆，与残障瞬间 * 00:51:53 残障群体内部的多元 * 00:54:29 无障碍设施造福所有人 * 00:05:10 Rage as a source of creativity * 00:11:01 Mercy’s origin story * 00:26:42 Baru’s origin story * 00:45:36 Human vulnerability, body memory, and moments of disability * 00:51:53 Highlighting the diversity within disabled community * 00:54:29 Accessible facilities benefit everyone 【支持我们 Please Support Us】 如果喜欢这期节目并愿意支持我们： * 海外用户：patreon.com/disabledtalks * 海内用户：afdian.com/a/disabledtalks * 商务合作邮箱：[email protected] If you like our show and want to support us, please consider the following: * Those Abroad: patreon.com/disabledtalks * Those in China: afdian.com/a/disabledtalks * Business Inquiries Email: [email protected]