时长:
80分钟
播放:
1,039
发布:
9个月前
简介...
【聊了什么 The What】
当我们热烈讨论"有尊严地死去"的权利时,是否曾停下来思考,有多少人尚未获得"有尊严地活着"的条件?在当代政治与伦理的激辩场上,安乐死权利被包装为自由与选择的象征,但在一个对残障理解不足的社会里,这种自由选择是否真的如表面般简单? 仁慈与林三土展开了一场关于安乐死的深度对话,试图穿透这个议题表面的浪漫色彩,直面其背后的复杂张力。从纳粹德国的T4计划到现代医疗系统的结构性缺陷,从残障者的日常挣扎到生命尊严的多元解读,这场对话展现了安乐死辩论中常被忽视的残障视角。
When we passionately debate the right to “die with dignity,” have we ever paused to ask how many people still lack the conditions to “live with dignity”? In the contemporary arena of political and ethical debates, the right to euthanasia is often presented as a symbol of freedom and personal choice. But in a society that lacks a thorough understanding of disability, is that freedom and choice really as straightforward as it seems? In this in-depth conversation, Mercy and Lin Santu discuss euthanasia and attempt to cut through its romanticized veneer, confronting the complex tensions beneath the surface. From Nazi Germany’s T4 program to the structural shortcomings of modern healthcare systems, from the daily struggles of people with disabilities to the multifaceted interpretations of dignity in life, their dialogue highlights the perspectives on euthanasia that are often overlooked by mainstream debates.
【时间轴 The When】
* 00:00:00 什么是高质量的生活?从残障视角重新思考生命的价值
* 00:05:38 安乐死的不同形式:主动与被动安乐死的区分
* 00:06:58 痛苦与自主选择:安乐死权益的基本诉求
* 00:25:31 早期安乐死运动中的偏见:对残障生活的误解
* 00:32:02 医患关系中的信息不对等:如何做出真正知情的选择?
* 00:37:48 现有安乐死法案中缺失的残障视角
* 00:47:53 家庭压力下的"自主"选择
* 00:52:22 照护责任应由社会承担而非个人
* 01:18:24 在追求"尊严死"之前,应先确保"尊严活"
* 00:00:00 So-called “life quality”: Rethinking the value of life from a disability perspective
* 00:05:38 Different forms of euthanasia: Distinguishing between active and passive euthanasia
* 00:06:58 Pain and autonomy: The fundamental demands of the right to euthanasia
* 00:25:31 Early euthanasia movements: Misunderstandings surrounding the lives of disabled people
* 00:32:02 Information asymmetry in doctor-patient relationships: How can we make truly informed choices?
* 00:37:48 The missing disability perspective in current euthanasia laws
* 00:47:53 “Autonomous” decisions under family pressure
* 00:52:22 Care responsibilities should be borne by society, not individuals
* 01:18:24 Before striving for a “dignified death,” we must first ensure a “dignified life”
【我们是谁 Who We Are】
残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题,我们致力于在日常生活和社会热点中搜寻被忽视的残障视角,期待和观众一起挑战刻板印象,打击健全中心主义(Ableism),从而真诚地感知、理解、创造自己与世界。
“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.
【支持我们 Please Support Us】
如果喜欢这期节目并愿意支持我们:
* 海外用户:patreon.com/disabledtalks
* 海内用户:afdian.com/a/disabledtalks
* 商务合作邮箱:[email protected]
If you like our show and want to support us, please consider the following:
* Those Abroad: patreon.com/disabledtalks
* Those in China: afdian.com/a/disabledtalks
* Business Inquiries Email: [email protected]
当我们热烈讨论"有尊严地死去"的权利时,是否曾停下来思考,有多少人尚未获得"有尊严地活着"的条件?在当代政治与伦理的激辩场上,安乐死权利被包装为自由与选择的象征,但在一个对残障理解不足的社会里,这种自由选择是否真的如表面般简单? 仁慈与林三土展开了一场关于安乐死的深度对话,试图穿透这个议题表面的浪漫色彩,直面其背后的复杂张力。从纳粹德国的T4计划到现代医疗系统的结构性缺陷,从残障者的日常挣扎到生命尊严的多元解读,这场对话展现了安乐死辩论中常被忽视的残障视角。
When we passionately debate the right to “die with dignity,” have we ever paused to ask how many people still lack the conditions to “live with dignity”? In the contemporary arena of political and ethical debates, the right to euthanasia is often presented as a symbol of freedom and personal choice. But in a society that lacks a thorough understanding of disability, is that freedom and choice really as straightforward as it seems? In this in-depth conversation, Mercy and Lin Santu discuss euthanasia and attempt to cut through its romanticized veneer, confronting the complex tensions beneath the surface. From Nazi Germany’s T4 program to the structural shortcomings of modern healthcare systems, from the daily struggles of people with disabilities to the multifaceted interpretations of dignity in life, their dialogue highlights the perspectives on euthanasia that are often overlooked by mainstream debates.
【时间轴 The When】
* 00:00:00 什么是高质量的生活?从残障视角重新思考生命的价值
* 00:05:38 安乐死的不同形式:主动与被动安乐死的区分
* 00:06:58 痛苦与自主选择:安乐死权益的基本诉求
* 00:25:31 早期安乐死运动中的偏见:对残障生活的误解
* 00:32:02 医患关系中的信息不对等:如何做出真正知情的选择?
* 00:37:48 现有安乐死法案中缺失的残障视角
* 00:47:53 家庭压力下的"自主"选择
* 00:52:22 照护责任应由社会承担而非个人
* 01:18:24 在追求"尊严死"之前,应先确保"尊严活"
* 00:00:00 So-called “life quality”: Rethinking the value of life from a disability perspective
* 00:05:38 Different forms of euthanasia: Distinguishing between active and passive euthanasia
* 00:06:58 Pain and autonomy: The fundamental demands of the right to euthanasia
* 00:25:31 Early euthanasia movements: Misunderstandings surrounding the lives of disabled people
* 00:32:02 Information asymmetry in doctor-patient relationships: How can we make truly informed choices?
* 00:37:48 The missing disability perspective in current euthanasia laws
* 00:47:53 “Autonomous” decisions under family pressure
* 00:52:22 Care responsibilities should be borne by society, not individuals
* 01:18:24 Before striving for a “dignified death,” we must first ensure a “dignified life”
【我们是谁 Who We Are】
残言片语是一档用残障视角看主流问题的中文播客。残障是人类无法逃避的脆弱性问题,我们致力于在日常生活和社会热点中搜寻被忽视的残障视角,期待和观众一起挑战刻板印象,打击健全中心主义(Ableism),从而真诚地感知、理解、创造自己与世界。
“Disabled Talks” is a Chinese podcast that explores mainstream issues through a disability lens, recognizing disability as an unavoidable aspect of human vulnerability often overlooked in mainstream discussions. Our mission is to uncover overlooked disability perspectives in everyday life and current events, challenge stereotypes, combat ableism alongside our audience, and foster genuine ways to perceive, understand, and shape ourselves and the world. Join us in reimagining societal narratives through the vital prism of disability experience.
【支持我们 Please Support Us】
如果喜欢这期节目并愿意支持我们:
* 海外用户:patreon.com/disabledtalks
* 海内用户:afdian.com/a/disabledtalks
* 商务合作邮箱:[email protected]
If you like our show and want to support us, please consider the following:
* Those Abroad: patreon.com/disabledtalks
* Those in China: afdian.com/a/disabledtalks
* Business Inquiries Email: [email protected]
评价...
空空如也
小宇宙热门评论...
疲惫小杨
9个月前
美国
5
一期彻底改变我对生死和身体看法的节目
越向书
9个月前
美国
4
小建议,将三土老师放标题里,将大大提高传播力。
狲狲
9个月前
美国
4
主播的个人体验很珍贵,带入残疾人视角立刻可以感受到对安乐死的不信任~土师也是一直关注安乐死议题,二位聊的很深入,有空得再听一遍
麻辣烫钥匙吹哨子
8个月前
中国香港
4
这期节目太有价值了,我从来没有思考过安乐死在残障视角下会这么不一样
ZZ_YF
8个月前
美国
3
最后主播分享的小故事,请问主播是怎么回应的?我个人认为是非常不礼貌的。勇敢这个词已经被贬值了。
香煎银鳕鱼
7个月前
法国
3
这期真是非常有价值的讨论。难得有一次我不同意林三土老师的观点,哈哈,感谢仁慈老师给的机会。三土老师提到的,残障群体选择安乐死比例没有比非残障人群更高这个统计数据,我觉得并不能说明什么,因为我们并不能默认这两个群体在排除外界压力情况下面对痛苦时的死亡意愿是应当相等的。甚至可以说,身心疾病带来的长期痛苦和生活不便就是一种残障,几乎所有选择安乐死的人都是残障者,只是残障状态的起始时间点有不同。
女巫之后
8个月前
瑞士
2
谢谢仁慈的分享🙏🏼
zuKiKi_
8个月前
上海
2
1,四大类(谁的意愿表达)
2,谁协助?有无协助?
19:19 t-14 仁慈老师
—》人的尊严问题or人的自主权问题(早期论述的不适。如何缓解痛苦,做不做得到)
—〉29:08 林老师:两个主题的联系。让每个人自己判断来规避歧视
—》31:40 仁慈老师回应。informed concern实践中落地,现实中分得开吗?ableism 的世界里的困难。重要的现实故事。
—>✨🌟 34:20 说得太好了。不知道就无法想象不同的生活…….informed concern
zuKiKi_
8个月前
上海
2
45:30 回应痛苦的主观性判断
—》pain 与suffering 依旧很主观
—〉性别规范压力下的表达。比例。还有race
疼痛与失能(家庭的负担)莎白(?)(求问这个当事人的名字…)的故事。
致命的责难。与照护者的关系。
这个决定不是孤立的。是在社会环境里的
—》54:30 林老师回应:残障问题中反复出现的母题:两套观点,自己是被照顾者时、和照顾者时。
熊大爱上光头强
9个月前
美国
1
48:31 我也会夸大,不然医生会让你在er等着不给看病
HD386634z
6个月前
浙江
1
残障人士希望非残障人士的观点不要影响自己的生活和选择,通过干涉非残障人士的生活和选择
侯斯顿
9个月前
湖北
1
37:15 好有道理!
6B6Z
8个月前
广东
1
感谢两位的分享,了解到很多残障群体的视角!
易水_VuRq
9个月前
浙江
1
我想说的不太符合这期节目主题,主要是对生死的看法,对于我来说生和死从形态上来说是紧密相连的,在我看来对于大部分的普通人来说如何生(活法)决定了一个人怎么死,你活的足够有尊严最终死的也自主,因为这一生你都在最大限度的努力掌控自己的人生,热烈且自由的活着,当寿终就寝时死亡只不过是一场人生结局。回到安乐死的问题上,如果我因为疾病失能给他人带来麻烦或无法忍受的疼痛,判定自己无法有尊严的活着而选择安乐死这真的属于自主选择还是对命运的屈服下做出的被动选择?
大风歌大棚菜
3个月前
湖南
0
谢谢。
CassandraMCY
1个月前
云南
0
林老师要在自己的播客也发下哦
Mars98563
1个月前
湖南
0
00:02 谢谢。